This is the second time I’ve started this post. The first came out like a lecture, and that’s not me. So I’ve decided that I am rather cranky today, and I’m attempting to get myself out of that. Another month has come and gone. It’s April Fools Day, and I’m in no mood to play along. It’s chilly and damp and if I could sleep the day away, I would. But, unfortunately, that’s not how life works. And the little fact that I am freezing…
I’m going to make this into my Ten Things for Thankful post and count my blessings while trying not to complain too much. I really need to do these more often than once every two weeks, because most days, I do have a lot to be thankful for. It’s just easy to see the blah when you’re feeling blah.
Beside the normal every day blessings when everyone is awake on time and gets to where they are going safely and then back home, with food to eat and a place to sleep, we do have a lot of blessings. Because lets face it. Many people don’t, and it is the simple things in life that mean so much more. The kisses good bye and hello. The see you after school and how was your day? The conversations. I can’t say that I miss my mothers watch or rings, but I sincerely miss the conversations we had, the sound of her voice, the laughter and the tears. Her favorite coffee cup means very little when I have the memories of everything else.
- A few weeks ago, we had some work done on the car. Something or other that I will never understand nor care to went wrong. Since our car had adaptions made before we bought it, these repairs were not covered under the recall. But Jim got notice this week that they are now paid in full. That’s always a relief to not have another bill hanging over your head.
- Around the same time, Eddie’s therapist told us that Ed might qualify for a loop hole in Pennsylvania that would take care of his co pays. Granted, Ed’s co pays are not our biggest financial issue, but they certainly did not help. It was $50 a month just to see her, and his prescription costs are around $100 a month. He also see’s his doctors office a bit more than most healthy kids because of Jamey and his anxiety (and because if something is going around, that child gets it.) Ed was approved. And it’s a huge relief.
- Ed struggles in History, which frustrates Jamey to no end, because Ed won’t ask for help. Well, for this quarter, Ed brought home a B in history. I am so proud of him because it really shows that he is working on it. And the rest of his report card was decent as well!
- I went Monday and picked up Jamey’s new medication. It really is too soon to tell, it’s the type of medication that takes some time to kick in, but I’m already noticing that he is sleeping longer at night and going longer without asking for his morning medication. We should know in a few weeks if it’s going to be “the one” that finally gives him a bit of his life back. I’m trying not to read too much into it for right now. The added plus is that there doesn’t seem to be any scary side effects.
- I’ve been holding off getting my ID renewed. It expired a long time ago and I just never had the time while I had the money to get it. Well, since I was in Pittsburgh alone on Monday, I stopped in and picked it up. Which also meant that I could go to Ed’s IEP meeting without trying to explain why I was too lazy to get my ID renewed (some people do not understand that sometimes it’s an expense that you just can’t cover.)
- I found out a few things this week about CRPS. It can be hereditary. It’s been a huge worry for both Jamey and I that Ed could possibly be in danger of getting it. Yes, Liver Disease can kill Jamey, and it will be what threatens his life, but CRPS is what stole his quality of life. But I also found out that a few simple vitamins can help prevent Ed from developing it. Right now he’s on Vitamin C. 500 mg every day and if he is injured it should go up to 1000 mg. I’m actually going to put him up to 1000 mg at the end of May when summer football practice starts. And I’ll talk to his doctor at his physical about the other one.
- Tuesday I woke up with the cluster headache from hell. (of course ALL cluster headaches are the cluster headache from hell) Thank God it faded by the next day. My longest one was three weeks. Three weeks of feeling like I was being shot in the head over and over and over again.
- My neighbors dog likes to run off when shes put out. Lately, she’s been going to the front door to be left back in. The other day, I saw her and walked up with her to knock on the door so that she could be left back in, the next day, she came over to me to do the same. It made me laugh. (She is such a sweet pup!)
- I met my cousins son again. The last time I remember meeting him, he was an infant. Now he’s all grown up (my cousin is 18 years older than me.) He seems like a nice guy!
- Jim is doing tonight’s dishes. My case of the grumps has turned into some sort of stomach issue. I get to relax and possibly go to bed early tonight.
And on that note, I’m headed to try to find something decent on Netflix and maybe fall asleep watching it while my tummy settles.
Enjoy your weekend!